Associate Director, Patient Engagement

🕒 Maio 19

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Asklepios BioPharmaceutical, Inc. (AskBio)

SiteLinkedInTodas as Vagas

501 - 1000 funcionários

Fundada em 2001

🏥 Saúde

💼 Consultoria

🧬 Biotecnologia

Healthcare • Consulting • Biotechnology

A Asklepios BioPharmaceutical, Inc. (AskBio) é uma empresa líder em terapia gênica focada no desenvolvimento de tratamentos para doenças genéticas debilitantes. Totalmente pertencente à Bayer AG, a AskBio é especializada em terapias gênicas baseadas em vírus adeno-associado (AAV), voltadas para o tratamento de diversas doenças neuromusculares, do sistema nervoso central, cardiovasculares e metabólicas. Um dos seus desenvolvimentos notáveis é o AB-1003 (LION-101), que recebeu designações da FDA de doença pediátrica rara e medicamento órfão para o tratamento da distrofia muscular dos cíngulos tipo 2I/R9. A AskBio está comprometida com o avanço da medicina genética, com um portfólio robusto de programas clínicos projetados para trazer opções terapêuticas inovadoras para pacientes em todo o mundo.

Descrição

• Develop and implement an external engagement strategy for our PD and MSA programs aligned to internal business needs and external community needs • Manage patient advocacy and external engagement to support AskBio’s development and commercial strategies in Parkinson’s Disease (PD) and Multiple System Atrophy (MSA) • Identify, develop, and cultivate trust-based relationships with patient advocacy and key patient/caregiver organizations consistent with the phase of development of AskBio clinical programs in CNS • Be responsible for the development and execution of the PD/MSA medical affairs patient advocacy/external engagement plan and ensure its alignment with overall PD/MSA program goals and key deliverables • Participate in and support patient organization events, workshops, and conferences to elevate gene therapy awareness and champion patient community engagement, as directed • Participate as an active member of cross-functional study teams that are responsible for ensuring on-time recruitment and retention of participants for clinical studies • Create and oversee quarterly community newsletter (AAVengers) for the community • Communicate progress, metrics and milestone status for PD/MSA to leadership, R&D partners and others • Engage with patient advocacy groups, foundations, and individual patients to understand their point of view and needs as it relates to patient-focused drug development • Establish and maintain strong relationships with key collaborators in the patient community • Collaborate with cross-functional teams to ensure patient perspective is internally understood and incorporated into company culture and patient needs are considered at all stages of product development • Collaborate with Corporate communications and external agencies to develop patient/advocate awareness of AskBio science and clinical programs • Manage standing patient council meetings and recruit and organize Patient advisory boards, focus groups, meetings as needed, in support of clinical programs • Perform other activities as assigned by the VP Medical Affairs and senior management • Work to cultivate a culture of appreciation for Patients as Partners within Askbio • Collaborate with Integrated Product Team, Clinical Development, Medical Affairs, Regulatory, Corporate Communications, Human Resources, Legal, Compliance and Partner companies to ensure that core values and corporate brand are represented in internal and external initiatives

🎯 Requisitos

• Bachelor's degree in life sciences, healthcare, public health, or a related field • At least 8 years’ experience in patient advocacy/engagement or closely related roles within the biotechnology and pharmaceutical healthcare industries • Experience in Neurology and/or Parkinson’s Disease • Understanding of drug development process, with an ability to communicate complex scientific concepts to diverse audiences • Consistent track record of performance in developing and driving strategic projects, including leading budgets and demonstrating impact • Proven ability to translate patient insights into actionable inputs for clinical development • Excellent communication and social skills to engage with patients, advocacy groups, and internal collaborators effectively • Demonstrated peer leadership experience and ability to inspire and motivate a matrixed team • Deep appreciation for patients and their families, with a passion for advocating on their behalf • Knowledge of regulatory and ethical considerations related to patient advocacy and engagement • Strong verbal and written communication skills, with the interpersonal skills to interact and collaborate effectively with people, internally and externally.

🏖️ Benefícios

• Paid time off • Flexible working arrangements