Director, Patient Advocacy and Engagement

🕒 6 dias atrás

🏄 California – Remoto

🏄 California – Remote

💵 $220.000 - $250.000 / ano

⏰ Tempo Integral

🔴 Especialista

👔 Diretor

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Encoded Therapeutics Inc.

SiteLinkedInTodas as Vagas

51 - 200 funcionários

Fundada em 2013

🏥 Saúde

💼 Consultoria

🏭 Manufatura

Healthcare • Consulting • Manufacturing

A Encoded Therapeutics Inc. é uma empresa de biotecnologia focada no desenvolvimento de medicamentos genéticos inovadores para tratar distúrbios do sistema nervoso central (SNC). O objetivo deles é enfrentar as causas subjacentes desses distúrbios, oferecendo terapias potencialmente transformadoras e duradouras, projetadas para melhorar os resultados dos pacientes e a qualidade de vida, especialmente para condições como Síndrome de Dravet e Síndrome de Angelman. A empresa utiliza uma plataforma única de direcionamento e regulação que permite maior especificidade gênica e seletividade celular, superando desafios associados às terapias gênicas de primeira geração. A Encoded Therapeutics é dedicada a transformar ciência de ponta em soluções práticas e que mudam a vida de pacientes em todo o mundo.

Descrição

• Help shape and lead execution of patient advocacy strategies across the portfolio • Support advocacy engagement for emerging pipeline programs by identifying key stakeholders and establishing long-term partnerships • Build and maintain relationships with patient advocacy organizations, community leaders, clinicians, and industry partners • Plan and execute listening sessions, advisory boards, and other insight-generation activities • Translate patient insights into recommendations informing development and launch planning • Partner with Clinical Operations, Medical Affairs, Regulatory, Health Economics and Outcomes Research, Market Access, Commercial, and Corporate Communications • Develop evidence-based educational materials and programs for patients and families • Support ethical and compliant clinical trial awareness and community engagement • Connect directly with patients and families to handle inquiries while maintaining privacy and confidentiality • Manage projects, budgets, grants, sponsorships, and external vendors • Champion the patient perspective and contribute to a patient-centric culture • Maintain working knowledge of ICH, GCP, HIPAA, and Medical–Legal–Regulatory review processes

🎯 Requisitos

• Bachelor’s Degree in a healthcare-related field, such as Nursing or Science, with a minimum of 12 years in patient advocacy or a closely related biopharmaceutical discipline with a bachelor’s degree, or 8 years with a master’s degree • Proven track record in rare disease clinical development and community engagement • Good judgment, professionalism, and ability to influence partners and develop consensus without direct authority • Demonstrated success executing advocacy plans and translating patient insights into practical deliverables • Strategic and critical thinking with tactical execution skills • Self-motivated, able to prioritize, take initiative, and manage a high volume of work with minimal supervision • Outstanding oral and written communication skills • Ability to translate complex scientific and clinical information into clear, empathetic language • Ability to present effectively to large audiences and small stakeholder groups • Proven track record establishing relationships across management teams and external stakeholder groups, including clinicians and researchers • Strong problem-solving abilities and attention to detail • Ability to manage multiple projects, vendors, and competing priorities concurrently • Proficiency with MS Office Suite and archiving systems • Willingness to travel domestically and internationally as needed • Master’s degree and clinical experience as a healthcare professional preferred • Direct experience with rare genetic disorders, neurology, including epilepsy or pain, and gene therapy programs preferred • Experience supporting programs from preclinical or early-stage community engagement through commercialization preferred • Experience with patient-focused drug development, patient-experience research, and patient-centered evidence preferred • Proven ability to manage external consultants, agencies, research vendors, grants, sponsorships, and project budgets preferred

🏖️ Benefícios

• Comprehensive benefits package, including competitive employer premium contributions • Meaningful stock option grants • PTO, sick time and holiday pay • Generous Parental Leave program • Pre-tax medical and dependent care programs • STD, LTD, Life and AD&D • Professional development opportunities • Team-building events • Fully stocked micro - kitchen • Fitness center at South San Francisco location • Discretionary annual bonus • Discretionary stock-based long-term incentives