Patient & Community Educator – Southern California Territory

🔥 6 minutes ago

🏄 California, Hawaii – Remote

🏄 California – Remote 🌺 Hawaii – Remote

💵 $195k - $220k / year

⏰ Full Time

🟡 Mid-level

🟠 Senior

👫 Community Manager

Apply Now

Find Similar Remote Jobs

Set Up Email Alert For New Jobs

📊 Check your resume score for this job

Improve your chances of getting an interview by checking your resume score before you apply.

Upload Resume

Soleno Therapeutics, Inc.

WebsiteLinkedInAll Job Openings

11 - 50 employees

Founded 2015

🧬 Biotechnology

💊 Pharmaceuticals

💰 $975k Grant on 2023-05

Biotechnology • Pharmaceuticals

Soleno Therapeutics, Inc. is a clinical-stage biopharmaceutical company focused on the development and commercialization of novel therapeutics to treat rare genetic disorders. The company is particularly focused on conditions such as Prader-Willi syndrome, and their lead candidate, DCCR (Diazoxide Choline) Extended-Release tablets, is currently in Phase 3 clinical trials. Soleno is inspired by the needs of patients and families living with rare diseases and aims to deliver effective treatment options to enhance their quality of life. The company is dedicated to advancing research and developing treatments for diseases with unmet medical needs, thereby contributing to shareholder value while improving patient outcomes.

📋 Description

• Organize and execute patient and caregiver engagement activities in a variety of settings including one-on-one settings, meetings, programs, and conferences of all sizes, and using a variety of communication media. • Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations. • Support national and regional advocacy events, conferences, and community programs, including those held on evenings or weekends as required. • Identify and share insights with internal teams and National Director PACE & DRS, from field interactions to inform broader educational strategy. • Collaborate cross-functionally with Residential Stakeholder Director (DRSs), Rare Disease Specialists (RDS), Regional Access Directors (RADs), Medical, Advocacy, and Marketing to ensure timely support and provide education on VYKAT XR to patients and caregivers. • Serve as a trusted, accessible resource to the PWS community, by providing educational support, while not directing care or offering medical advice. • Support Caregiver Advisory Boards, including identification and coordination of appropriate advisors. • Keep timely documentation within PRM system to capture activities with patients, caregivers, and HCPs. • Maintain disease-state and product expertise through continuing education and attendance at relevant symposia, conferences, and other educational opportunities. • Utilize only approved resources and messages to perform function responsibilities. • Respect the privacy of patients and their caregivers/families and manage all personal information in accordance with all laws, regulations, and policies. • It is the responsibility of all company employees who receive information pertaining to a possible adverse event (AE) or serious adverse event (SAE) to understand that the appropriate clinical and regulatory personnel must be notified of the event promptly upon receipt regardless of severity. • MBOs will be established to measure the effectiveness of PACE educational activities on a continual basis and adjusts course where appropriate. • Maintain documentation requirements for clinical licenses and clinical certification. • This is not a promotional selling role and is not accountable for delivery of organization sales goals.

🎯 Requirements

• Bachelor’s degree in nursing, dietetics, social work, allied health, and/or clinical background; advanced degree preferred. • 5+ years of experience in the pharmaceutical/biotech industry; rare disease experience in specialty products preferred. • Experience in the following specialties: Endocrinology, Rare Obesity/Hyperphagia, or Genetics. • 3 + years’ experience in designing and/or providing patient/caregiver/consumer-oriented education, ideally in rare disease. • Prior product launch experience preferred. • Strong understanding of industry legal, regulatory, and compliance landscape. • Excellent understanding of patient-literacy concepts and ability to communicate complex scientific/medical information in patient-friendly language. • Fluent in English. • Fluent in Spanish, highly preferred. • Ability to work independently and collaboratively with a diverse cross functional team. • Excellent communication skills and cultural competency, with ability to engage diverse audiences. • Self-starter who is highly passionate about rare diseases.

🏖️ Benefits

• N/A