Director, Patient Advocacy – Engagement

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🔥 0 minutes ago

⛰️ Colorado, Massachusetts – Remote

⛰️ Colorado – Remote 🍂 Massachusetts – Remote

💵 $220k - $250k / year

⏰ Full Time

🔴 Lead

👔 Director

👻 Ghost score 20%

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CultureHQ

WebsiteLinkedInAll Job Openings

1 - 10 employees

Founded 2017

☁️ SaaS

SaaS

CultureHQ is a web-based application; the provided text only indicates that the application requires JavaScript to run. No additional information about the company's offerings, target customers, or industry was provided.

📋 Description

• Establish Cogent as a strong partner to the global Systemic Mastocytosis patient advocacy community • Build strategic long-term partnerships, strengthen existing collaborations, and identify new groups for engagement • Develop, lead, and execute the annual Patient Advocacy & Engagement strategic plan, including commercial launches • Lead external patient advocacy engagement strategy and execute strategic partnerships with patient advocacy groups and medical associations • Develop and execute patient-facing educational initiatives focused on program awareness, disease education, and access to care • Support global, national, and local patient advocacy organizations through relationship building, networking, capacity building, and best-practice sharing • Conduct virtual and in-person patient advisory boards and champion patient insights • Collaborate with Marketing, Market Access, Patient Services, Medical Affairs, Clinical Development, Patient Recruitment, Legal, Regulatory, and Research teams • Oversee vendors, budgets, timelines, and deliverables for advocacy and engagement initiatives • Coordinate Cogent’s presence at patient meetings and awareness days/months • Represent Cogent at U.S. and global patient advocacy meetings, events, and scientific congresses • Develop metrics to measure advocacy initiative success • Innovate and elevate Cogent’s patient advocacy and engagement approach • Maintain cross-functional coordination, strategic planning, budget adherence, compliance, customer service, and creativity

🎯 Requirements

• Bachelor’s degree is required • 8-12+ years in patient advocacy, patient engagement, patient marketing, patient services, or related pharmaceutical industry experience required • Deep understanding of commercialization and R&D, including successful commercial product launches • Demonstrated success navigating regulatory and legal compliance related to advocacy efforts • Experience in rare diseases, hematology, allergy/immunology, or oncology preferred • Experience developing and executing patient-facing disease education and awareness resources and initiatives • Experience in patient digital health initiatives and campaigns is a plus • Excellent organizational, planning, and interpersonal skills • Strong executive presence and communication skills • Ability to make sound decisions and communicate recommendations using decision-support data and regulatory considerations • Experience working with all levels of management and consulting with key business stakeholders • Ability to work individually, within multidisciplinary teams, and with external partners and vendors • Ability to travel to key U.S. and global congresses and patient events as needed, up to 30% • Role can be U.S. remote or located in Waltham, MA or Boulder, CO

🏖️ Benefits

• Competitive salary • Target bonus of 20% • Ongoing stock awards • 100% employer-paid medical, dental, and vision premiums for employees and families • Up to 75% of in-network deductibles funded • 401(k) match with immediate vesting • Generous paid time off • 12 weeks of fully paid parental leave • Paid family and medical leave for all employees regardless of location • Company-paid short-term disability coverage for up to 20 weeks • Wellness programs • Tuition reimbursement • Inclusive family-forming support