Patient Engagement Liaison – Midwest

🕒 September 14

🌽 Illinois, Michigan, +1 more states – Remote

🌽 Illinois – Remote 🚗 Michigan – Remote 🧀 Wisconsin – Remote

💵 $120k - $140k / year

⏰ Full Time

🟡 Mid-level

🟠 Senior

👻 Ghost score 2%

What it means: the chance that no one is really hiring for this job.How to read it: 60% or higher means we think this is a ghost. Lower scores are less of a worry.How we score it: age, reposts, open roles vs team size, how fast jobs close, and whether pay is listed.Fine print: an estimate from public data, not a judgment of the company. Real jobs can score high, so treat it as a hint, not a fact.

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PTC Therapeutics, Inc.

WebsiteLinkedInAll Job Openings

501 - 1000 employees

Founded 1998

🧬 Biotechnology

🏥 Healthcare

💊 Pharmaceuticals

Biotechnology • Healthcare • Pharmaceuticals

PTC Therapeutics, Inc. is a patient-centered biopharmaceutical company focused on discovering, developing, and commercializing medicine for children and adults living with rare and serious diseases. They are committed to extending life's moments for patients with rare diseases and their loved ones, specializing in orphan and ultra-orphan disorders, oncology, and anti-infectives.

📋 Description

• Engage with the rare disease community, including patient advocacy organizations, to understand the rare experience and incorporate insights throughout PTC • Collaborate with internal PTC teams to identify, educate, build, and leverage relationships with people living with rare diseases, caregivers, and Patient Advocacy Organizations • Assist communities with resources to help remove access barriers and gain coverage for marketed products, where appropriate • Build patient advocacy and community relationships for marketed product disease states and products in development, consistent with applicable regulations • Work cross-functionally with medical, communications, commercial, legal, and compliance colleagues to ensure guidelines, standards, and regulations are followed • Connect families to Patient Advocacy Organizations and resources • Develop, plan, and execute educational programs for people living with rare diseases and caregivers • Support Patient Advocacy Organizations through shared interests in education and programs • Work with the rare disease community to advocate for access to care and therapies • Field-based role supporting primarily the Phenylketonuria (PKU) community and potentially other therapeutic-area communities • Travel up to 75% domestically, including overnights, weekends, and evenings as needed; potential international travel

🎯 Requirements

• Bachelor’s degree • 5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field • Experience supporting people with rare diseases, their caregivers and advocacy organizations • Understanding of healthcare, specialty pharmacy, pharma, and biotech industry • Maintenance of all compliance rules and confidentiality • Demonstrated leadership working as part of cross functional teams • History of building and maintaining strong relationships, internally and externally • Proficiency with Microsoft Office suite and Zoom • Excellent verbal and written communication and presentation skills, including ability to explain technical information to non-technical audiences • Ability to work independently and collaboratively in a fast-paced matrixed team environment • Analytical and critical thinking skills; ability to adapt to changing priorities and deadlines • Planning, organization, and time management skills • Ability to enter data quickly, confidentially, and accurately into CRM • Valid driver’s license and clean driving record • Ability to travel extensively throughout assigned territory, country, and potentially globally • Degree in a related clinical or scientific discipline, including nursing, public health, social work, nutrition, or dietetics, preferred

🏖️ Benefits

• Short- and long-term incentives • Medical plan • Dental plan • Vision plan • Retirement savings plan

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