Patient & Community Educator – Floater

🔥 2 hours ago

🦌 Connecticut, District of Columbia, +4 more states – Remote

🦌 Connecticut – Remote 🏛️ District of Columbia – Remote 🐊 Florida – Remote 🗽 New York – Remote 🏈 Ohio – Remote 🎸 Mississippi – Remote

💵 $195k - $220k / year

⏰ Full Time

🟡 Mid-level

🟠 Senior

👫 Community Manager

Apply Now

Find Similar Remote Jobs

Set Up Email Alert For New Jobs

📊 Check your resume score for this job

Improve your chances of getting an interview by checking your resume score before you apply.

Upload Resume

Soleno Therapeutics, Inc.

WebsiteLinkedInAll Job Openings

11 - 50 employees

Founded 2015

🏥 Healthcare

🏭 Manufacturing

🧬 Biotechnology

💰 $975k Grant on 2023-05

Healthcare • Manufacturing • Biotechnology

Soleno Therapeutics, Inc. is a clinical-stage biopharmaceutical company focused on the development and commercialization of novel therapeutics to treat rare genetic disorders. The company is particularly focused on conditions such as Prader-Willi syndrome, and their lead candidate, DCCR (Diazoxide Choline) Extended-Release tablets, is currently in Phase 3 clinical trials. Soleno is inspired by the needs of patients and families living with rare diseases and aims to deliver effective treatment options to enhance their quality of life. The company is dedicated to advancing research and developing treatments for diseases with unmet medical needs, thereby contributing to shareholder value while improving patient outcomes.

📋 Description

• Organize and execute patient and caregiver engagement activities • Conduct educational in-services for patients, caregivers, and healthcare providers • Support national and regional advocacy events, conferences, and community programs • Identify and share insights with internal teams to inform broader educational strategy • Collaborate cross-functionally with various teams to ensure timely support • Serve as a trusted resource to the PWS community by providing educational support • Maintain documentation requirements for clinical licenses and clinical certification

🎯 Requirements

• Bachelor’s degree in nursing, dietetics, social work, allied health, or clinical background; advanced degree preferred • 5+ years of experience in the pharmaceutical/biotech industry; rare disease experience in specialty products preferred • Experience in endocrinology, rare obesity/hyperphagia, or genetics • 3+ years’ experience in designing and/or providing patient/caregiver/consumer-oriented education, ideally in rare disease • Strong understanding of industry legal, regulatory, and compliance landscape • Excellent understanding of patient-literacy concepts and ability to communicate complex scientific/medical information in patient-friendly language • Fluent in English; fluent in Spanish highly preferred • Ability to work independently and collaboratively with a diverse cross-functional team • Self-starter who is highly passionate about rare diseases.

🏖️ Benefits

• Compliant, non-promotional education for caregivers, patients, and healthcare professionals • Continuing education opportunities