Associate Director, Patient Navigator

🕒 2 days ago

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Genetix Biotherapeutics

WebsiteLinkedInAll Job Openings

201 - 500 employees

🧬 Biotechnology

💊 Pharmaceuticals

Biotechnology • Pharmaceuticals

Genetix Biotherapeutics is a biotechnology company that develops and commercializes one-time, autologous gene therapies for rare genetic blood and neurological disorders. Formerly bluebird bio, the company focuses on curative treatments for sickle cell disease, β-thalassemia, and cerebral adrenoleukodystrophy (CALD), with multiple FDA-approved therapies built on decades of research and extensive clinical experience. Now privately held, Genetix emphasizes commercial execution, scaling patient access, long-term safety follow-up, and patient support services to improve treatment delivery and outcomes.

📋 Description

• Provide high-touch, education, support & resources to patients and caregivers regarding the gene therapy treatment process, including pre-treatment considerations, treatment day logistics, and post-treatment expectations. • Educate the patient on their gene therapy coverage based on their benefits and the steps needed to gain prior authorization to ensure understanding of the process for access. • Assess patient and caregiver needs, tailoring resources and education to ensure understanding, confidence, and support. • Serve as a trusted point of contact for patients, ensuring questions are answered in a compassionate and compliant manner. • Guide patients through the treatment journey, coordinating support services such as travel, lodging, reimbursement, and offering connection to resources. • Identify potential barriers to treatment and implement proactive strategies to resolve access challenges in collaboration with cross-functional partners. • Monitor patient milestones and adherence to treatment timelines, ensuring delivery of high-quality and timely support. • Educate internal and external stakeholders on the program to drive awareness. • Work with Qualified Treatment Centers (QTCs) to monitor patient status and facilitate patient support. • Partners with QTCs, healthcare providers, and advocacy organizations to enhance patient and caregiver education, increase awareness of program services, and support treatment readiness. • Represent Patient Services at community-based organization (CBO) events, patient advocacy conferences, and industry meetings. • Gather insights from QTC visits, CBO interactions, and conference attendance to inform program design, messaging, and outreach strategy. • Communicate key insights and patient trends back to internal stakeholders to continuously refine engagement approaches and optimize program design. • Contribute to the design and implementation of patient support initiatives, work instructions, patient-facing resources, and best practices. • Utilize data, analytics, and patient feedback to identify opportunities for program improvement and drive excellence.

🎯 Requirements

• BA/BS with a minimum of 10 years of pharmaceutical/biotech patient services experience with demonstrated expertise in access/reimbursement and complex case management. Registered Nurse (RN) and Gene therapy experience is a plus. • Direct experience working with patients and/or caregivers. • Strong knowledge of payer systems, reimbursement processes, and patient assistance resources. • Exceptional communication skills, with the ability to engage patients, caregivers, and healthcare providers with empathy and clarity. • Deep empathy, resilience, creativity in problem-solving, attention to detail, and action oriented. • Proficiency in data analysis and application of performance metrics to inform program improvements. • Knowledge of regulatory and compliance guidelines for industry and ability to evaluate unique scenarios in the context of program SOPs, policies and OIG requirements.

🏖️ Benefits

• comprehensive health, life and disability insurance • employer-matched 401(k) plan • lifestyle spending account • flexible time-off + paid holidays and winter holiday period • tuition reimbursement & loan repayment assistance • paid parental leave • paid onsite parking • commuter subsidy