Patient and Community Educator, PACE

September 21

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Soleno Therapeutics, Inc.

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Biotechnology • Pharmaceuticals

Soleno Therapeutics, Inc. is a clinical-stage biopharmaceutical company focused on the development and commercialization of novel therapeutics to treat rare genetic disorders. The company is particularly focused on conditions such as Prader-Willi syndrome, and their lead candidate, DCCR (Diazoxide Choline) Extended-Release tablets, is currently in Phase 3 clinical trials. Soleno is inspired by the needs of patients and families living with rare diseases and aims to deliver effective treatment options to enhance their quality of life. The company is dedicated to advancing research and developing treatments for diseases with unmet medical needs, thereby contributing to shareholder value while improving patient outcomes.

11 - 50 employees

Founded 2015

🧬 Biotechnology

💊 Pharmaceuticals

💰 $975k Grant on 2023-05

📋 Description

• Deliver compliant, non-promotional education to caregivers, patients, residential staff, and healthcare professionals on Prader-Willi syndrome (PWS) and Soleno’s approved therapy. • Organize and execute patient and caregiver engagement activities in one-on-one settings, meetings, programs, and conferences. • Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations. • Support national and regional advocacy events, conferences, and community programs, including evenings or weekends. • Identify and share field insights with internal teams to inform broader educational strategy. • Collaborate cross-functionally with DRSs, RDS, RADs, Medical, Advocacy, and Marketing to provide education on VYKAT XR. • Serve as a trusted, accessible resource to the PWS community without directing care or offering medical advice. • Support Caregiver Advisory Boards and coordinate appropriate advisors. • Keep timely documentation within PRM system to capture activities with patients, caregivers, and HCPs. • Maintain disease-state and product expertise through continuing education and attendance at relevant symposia and conferences. • Utilize only approved resources and messages and respect patient privacy and reporting obligations for adverse events. • MBOs will measure effectiveness of educational activities and require course adjustments as appropriate.

🎯 Requirements

• Bachelor’s degree in nursing, dietetics, social work, allied health, and/or clinical background; advanced degree preferred. • 5+ years of experience in the pharmaceutical/biotech industry; rare disease experience in specialty products preferred. • Experience in Endocrinology, Rare Obesity/Hyperphagia, or Genetics. • 3+ years’ experience designing and/or providing patient/caregiver/consumer-oriented education, ideally in rare disease. • Prior product launch experience preferred. • Strong understanding of industry legal, regulatory, and compliance landscape. • Excellent understanding of patient-literacy concepts and ability to communicate complex scientific/medical information in patient-friendly language. • Fluent in English; fluent in Spanish highly preferred. • Ability to work independently and collaboratively with a diverse cross functional team. • Excellent communication skills and cultural competency, with ability to engage diverse audiences. • Self-starter passionate about rare diseases. • Availability to participate in evening and weekend events as needed. • Comfortable with frequent domestic travel (50%+) and have easy access to transportation and airports. • Maintain documentation requirements for clinical licenses and clinical certification.