Associate Director, US Patient Advocacy

🕒 August 10

🇺🇸 United States – Remote

💵 $164k - $225.5k / year

⏰ Full Time

🟠 Senior

👔 Director

🦅 H1B Visa Sponsor

This company has sponsored H1B visas in the past.

👻 Ghost score 15%

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argenx

WebsiteLinkedInAll Job Openings

1001 - 5000 employees

Founded 2008

🏥 Healthcare

💼 Consulting

🧬 Biotechnology

Healthcare • Consulting • Biotechnology

argenx is a biotechnology company committed to improving the lives of patients through immunology innovation. The company focuses on developing novel antibody-based therapies to treat severe autoimmune diseases. Using a collaborative approach with pioneering scientists and academic partners, argenx accelerates the discovery of therapeutic antibodies that target specific disease pathways. The company's proprietary products, such as efgartigimod, are aimed at treating diseases where IgG antibodies are pathogenic. Argenx emphasizes innovation, science of collaboration, and patient-centric approaches in its mission to deliver life-changing medical solutions.

📋 Description

• Act as the primary point of contact for external Patient Advocacy Organization partners and internal argenx teams • Set and maintain indication-level Patient Advocacy strategy • Communicate Advocacy strategy to internal and external partners • Bring the patient voice into development milestones, including endpoint selection • Partner with cross-functional teams to support patient communities for in-market indications • Develop and implement patient advocacy strategies and engagement plans for disease therapeutic areas • Balance and prioritize pipeline and in-market indications, including gMG and CIDP • Execute national and local patient advocacy engagement strategies • Translate US and market strategies into actionable tactics and events • Build and manage relationships with US Patient Advocacy Organizations • Build understanding of patient needs through patient events, panels, and cross-functional opportunities • Provide local support to the patient services team during patient onboarding • Represent argenx externally at events and conferences • Define and measure business impact at local, regional, and national events • Maintain disease-state, Patient Experience, and product knowledge • Generate and synthesize insights for internal teams • Work cross-functionally to identify patient advocacy needs and opportunities • Serve as a voice for the patient community within argenx and the Advocacy team • Manage compliant events, patient advocacy organization sponsorships, and budgeting • Own Advocacy strategy for assigned indications from development through in-market • Ensure activity alignment and prioritization through frameworks, standardization, and ways of working • Spend meaningful time in covered geographies building relationships with PAOs and attending prioritized patient events

🎯 Requirements

• Bachelor’s Degree required • 10 years industry or related experience • Proven capability and success implementing innovative programs within rare disease and with minority and underserved patient communities • Proven track record setting and maintaining adherence to an Advocacy strategy for a given indication or Therapeutic Area • Veeva experience and proficiency required • Experience with rare disease patient interactions and compliance required • Willing to travel up to 50% of the time • Willing to attend events outside of business hours, including weekends and evenings • Passion for understanding and championing the needs of people living with rare diseases, their caregivers, and their community • Strong communication skills, including active listening, fluent and succinct verbal and written expression, and effective presentations • Desire and knowledge to integrate the patient voice into the end-to-end product lifecycle • Advanced Degree preferred

🏖️ Benefits

• Short-term and long-term incentive programs • Retirement savings plans • Health benefits • Comprehensive benefits package • Flexible schedule to accommodate evening and weekend work