Director, Patient Advocacy – Engagement

Job not on LinkedIn

🕒 September 21

⛰️ Colorado, Massachusetts – Remote

⛰️ Colorado – Remote 🍂 Massachusetts – Remote

💵 $220k - $250k / year

⏰ Full Time

🔴 Lead

👔 Director

👻 Ghost score 13%

What it means: the chance that no one is really hiring for this job.How to read it: 60% or higher means we think this is a ghost. Lower scores are less of a worry.How we score it: age, reposts, open roles vs team size, how fast jobs close, and whether pay is listed.Fine print: an estimate from public data, not a judgment of the company. Real jobs can score high, so treat it as a hint, not a fact.

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Cogent Biosciences

WebsiteLinkedInAll Job Openings

51 - 200 employees

Founded 2015

🏥 Healthcare

💼 Consulting

🧬 Biotechnology

Healthcare • Consulting • Biotechnology

Cogent Biosciences is a biotechnology company focused on developing precision therapies for genetically defined diseases. With a commitment to advancing best-in-class small molecule therapeutics, Cogent aims to tackle diseases with clear genetic mutations as their cause. Their work is driven by a dedication to improve human health by designing rational precision therapies that address critical unmet medical needs. The company operates with a focus on diseases such as systemic mastocytosis, for which they are currently developing and advancing therapeutics like bezuclastinib. Cogent Biosciences highlights their commitment to transforming patient lives through innovative scientific approaches and robust clinical trials.

📋 Description

• Establish Cogent as a strong partner to the global Systemic Mastocytosis patient advocacy community • Build strategic long-term partnerships, strengthen existing collaborations, and identify new groups for engagement • Develop, lead, and execute the annual Patient Advocacy & Engagement strategic plan, including commercial launches • Lead external patient advocacy engagement strategy and execute strategic partnerships with patient advocacy groups and medical associations • Develop and execute patient-facing educational initiatives focused on program awareness, disease education, and access to care • Support global, national, and local patient advocacy organizations through relationship building, networking, capacity building, and best-practice sharing • Conduct virtual and in-person patient advisory boards and champion patient insights • Collaborate with Marketing, Market Access, Patient Services, Medical Affairs, Clinical Development, Patient Recruitment, Legal, Regulatory, and Research teams • Oversee vendors, budgets, timelines, and deliverables for advocacy and engagement initiatives • Coordinate Cogent’s presence at patient meetings and awareness days/months • Represent Cogent at U.S. and global patient advocacy meetings, events, and scientific congresses • Develop metrics to measure advocacy initiative success • Innovate and elevate Cogent’s patient advocacy and engagement approach • Maintain cross-functional coordination, strategic planning, budget adherence, compliance, customer service, and creativity

🎯 Requirements

• Bachelor’s degree is required • 8-12+ years in patient advocacy, patient engagement, patient marketing, patient services, or related pharmaceutical industry experience required • Deep understanding of commercialization and R&D, including successful commercial product launches • Demonstrated success navigating regulatory and legal compliance related to advocacy efforts • Experience in rare diseases, hematology, allergy/immunology, or oncology preferred • Experience developing and executing patient-facing disease education and awareness resources and initiatives • Experience in patient digital health initiatives and campaigns is a plus • Excellent organizational, planning, and interpersonal skills • Strong executive presence and communication skills • Ability to make sound decisions and communicate recommendations using decision-support data and regulatory considerations • Experience working with all levels of management and consulting with key business stakeholders • Ability to work individually, within multidisciplinary teams, and with external partners and vendors • Ability to travel to key U.S. and global congresses and patient events as needed, up to 30% • Role can be U.S. remote or located in Waltham, MA or Boulder, CO

🏖️ Benefits

• Competitive salary • Target bonus of 20% • Ongoing stock awards • 100% employer-paid medical, dental, and vision premiums for employees and families • Up to 75% of in-network deductibles funded • 401(k) match with immediate vesting • Generous paid time off • 12 weeks of fully paid parental leave • Paid family and medical leave for all employees regardless of location • Company-paid short-term disability coverage for up to 20 weeks • Wellness programs • Tuition reimbursement • Inclusive family-forming support

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