Regional Director, Rare Disease, Neurology

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🔥 4 minutes ago

🇺🇸 United States – Remote

💵 $225.9k - $279.1k / year

⏰ Full Time

🔴 Lead

👔 Director

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Ultragenyx

WebsiteLinkedInAll Job Openings

501 - 1000 employees

Founded 2010

🏥 Healthcare

💼 Consulting

📦 Logistics

Healthcare • Consulting • Logistics

Ultragenyx is a biopharmaceutical company dedicated to transforming the lives of individuals with rare and ultrarare genetic diseases. The company focuses on developing and delivering treatments for conditions where no current therapies exist, utilizing a variety of drug modalities tailored to each disease. Ultragenyx boasts a robust and diverse clinical pipeline, with therapies in development for genetic diseases such as Wilson Disease, osteogenesis imperfecta, and Angelman Syndrome. With a passionate team and a commitment to patient advocacy, Ultragenyx aims to lead the way in pioneering therapies that significantly impact rare disease communities.

📋 Description

• Recruit, develop, coach, and retain a high-performing, diverse team of Neurology-focused commercial field professionals • Lead regional business planning and execution to achieve launch, growth, and performance objectives aligned with national commercial strategy • Drive launch readiness and post-launch execution, ensuring excellence in customer engagement, account planning, and team preparedness • Coach field team members through regular field visits, performance reviews, and development planning • Ensure team expertise in rare neurologic diseases, patient identification, treatment pathways, market access, reimbursement, and site-of-care dynamics • Build and maintain strategic relationships with healthcare providers, Centers of Excellence, integrated health systems, advocacy organizations, and other key stakeholders • Partner cross-functionally with Medical Affairs, Market Access, Patient Services, Marketing, Commercial Operations, and other stakeholders to optimize patient access and business outcomes • Analyze market trends, competitive activity, customer insights, and business performance data to inform regional strategy and decision-making • Manage regional resources, budgets, meetings, training initiatives, and commercial activities in compliance with company policies and industry regulations • Foster a patient-first, compliant, and collaborative culture while leading organizational change, innovation, and continuous improvement

🎯 Requirements

• Bachelor's degree required; advanced degree preferred • 7+ years of pharmaceutical, biotechnology, rare disease, or specialty field leadership experience with a track record of commercial success • Rare disease experience required; rare neurology experience strongly preferred • Experience launching and/or commercializing highly specialized therapies, including ASO, gene therapy, or other advanced treatments, preferred • Demonstrated success building, coaching, and developing high-performing teams while promoting accountability, compliance, and talent growth • Strong understanding of rare disease patient journeys, diagnosis pathways, treatment administration, reimbursement, market access, and site-of-care considerations • Experience working with academic medical centers, Centers of Excellence, infusion networks, multidisciplinary care teams, and complex healthcare systems preferred • Proven ability to develop and execute strategic account plans and translate data-driven insights into actionable business strategies • Strong cross-functional leadership, collaboration, and influencing skills, with the ability to navigate ambiguity in a fast-paced environment • High ethical standards and strong business acumen • Approximately 60–70% travel required, including overnight travel as needed

🏖️ Benefits

• Generous vacation time and public holidays observed by the company • Volunteer days • Long term incentive and Employee stock purchase plans or equivalent offerings • Employee wellbeing benefits • Fitness reimbursement • Tuition sponsoring • Professional development plans • Annual bonus • Equity incentives