Patient Engagement Manager

🕒 May 19

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Sobi - Swedish Orphan Biovitrum AB (publ)

WebsiteLinkedInAll Job Openings

1001 - 5000 employees

Founded 1991

🧬 Biotechnology

💊 Pharmaceuticals

⚕️ Healthcare Insurance

Biotechnology • Pharmaceuticals • Healthcare Insurance

Sobi - Swedish Orphan Biovitrum AB (publ) is a global leader in providing innovative treatments for people with rare diseases. Specializing in therapeutic areas such as haematology and immunology, Sobi is committed to improving patient access to medicines for rare and debilitating conditions. With a strong R&D pipeline, the company is actively pursuing new therapies and collaborating globally to transform patient care in areas such as haemophilia and immune thrombocytopenia. Sobi also engages in extensive sustainability and humanitarian aid programs, demonstrating a firm commitment to patient-centric care and societal contributions.

📋 Description

• Responsible for operational execution of patient engagement and advocacy activities across CEE countries • Focus on direct interaction with patient advocacy groups (PAGs) • Support the implementation of community engagement initiatives, projects and activities • Ensure compliance with internal governance, legal and regulatory requirements • Act as a patient engagement contact for assigned countries • Coordinate activities with cluster/country teams • Support collection and documentation of patient insights from interactions with PAGs

🎯 Requirements

• University degree • Experience in patient engagement, community engagement, advocacy or related roles within pharma, healthcare or non‑governmental organizations (NGOs) • Experience working with patient organizations is highly desirable • Understanding of health system and healthcare decision making, including regulatory, safety, legal and compliance environment. • Strong interpersonal and communication skills • Ability to build trust‑based relationships with patient organizations • Good organizational and coordination skills • Ability to work in cross‑functional and multicultural environments • Understanding of compliance requirements related to external engagement

🏖️ Benefits

• Competitive compensation for your work • Emphasis on work/life balance • Collaborative and team-oriented environment • Opportunities for professional growth • Diversity and Inclusion • Making a positive impact to help ultra-rare disease patients who are in need of life saving treatments