Director, Patient Services – Neuromuscular Disorders

🔥 0 minutes ago

🇺🇸 United States – Remote

💵 $230k - $250k / year

⏰ Full Time

🔴 Lead

👔 Director

👻 Ghost score 0%

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ITF Therapeutics LLC

WebsiteLinkedInAll Job Openings

51 - 200 employees

Founded 2024

💊 Pharmaceuticals

🏥 Healthcare

Pharmaceuticals • Healthcare

ITF Therapeutics LLC is a pharmaceutical division of Italfarmaco S. p. A focused on developing, delivering, and supporting treatments for rare diseases. The company's website emphasizes medicines and science, a product pipeline, clinical studies, expanded access policies, and patient advocacy and engagement—stressing patient-centric care and support for rare disease communities. ITF Therapeutics describes activities including clinical research, medical grants, sponsorships, and community outreach, and references branded medicines (e. g. , DUVYZAT) and compliance materials such as code of conduct and privacy policies.

📋 Description

• Own the relationship and ultimate operational accountability for ITF’s patient support services and specialty pharmacy fulfillment • Lead the strategic design, business rules optimization, and daily operational execution of the ITF ARC (Access, Resources, and Care) program • Ensure an uninterrupted, high-touch journey for patients, caregivers, and providers navigating treatment with DUVYZAT™ (givinostat) • Manage the specialized in-home lab monitoring program • Serve as primary relationship manager and strategic point of contact for the exclusive combined Hub/Specialty Pharmacy partner • Manage day-to-day operations, vendor accountability, time-to-first-fill, conversion, and persistency metrics • Maintain and update hub business rules, communication workflows, and SOPs • Refine the ITF ARC program to eliminate commercial or government access barriers and minimize pipeline drop-offs • Direct the third-party in-home lab monitoring partner and ensure compliant reporting to healthcare providers and ITF • Maintain data exchange and analytics pipelines with Hub/SP and ancillary vendors • Synthesize patient funnel metrics, daily data feeds, operational KPIs, and adherence trends into actionable leadership insights • Collaborate with Field Reimbursement Manager, national accounts, Marketing, Sales, Patient Advocacy, Medical Affairs, and Legal • Oversee compliance, eligibility, and execution of co-pay assistance, QuickStart/bridge programs, and Patient Assistance Programs

🎯 Requirements

• Bachelor’s degree required; advanced degree preferred • Minimum of 8–10 years of experience in the pharmaceutical, biotechnology, or life sciences industry • Deep, practical expertise across specialty drug distribution, specialty pharmacy operations, and third-party patient service (Hub) frameworks • At least 3–5 years of demonstrated success managing high-touch, lower-volume patient support models within the rare disease or orphan drug landscape • Proven track record directly managing an external, third-party vendor relationship • Robust, foundational understanding of HIPAA data privacy regulations and OIG guidelines governing patient support services and interaction with patient communities

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