
11 - 50 employees
🏥 Healthcare
💼 Consulting
📦 Logistics
Healthcare • Consulting • Logistics
Cure HHT is a non-profit organization dedicated to raising awareness, funding research, and advancing treatment for Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome. This genetic disorder affects blood vessels, leading to severe health issues if not diagnosed and treated early. Established in 1991, Cure HHT supports patients through education, resources, support groups, and conferences, while driving scientific research through grants and partnerships. It aims to improve the lives of those impacted by HHT globally and seeks donations to continue its transformative work in research and patient care.
Selected: 🆕 Date Added.
🔥 4 hours ago
Registry operations director leading Cure HHT’s CHORUS and HHT Connect rare-disease patient registries. Rebuilding governance, compliance, data sharing, vendor management, and participant recruitment.
🔥 4 hours ago
VP leading Cure HHT’s clinical-trial network, patient recruitment, and biotech partnerships. Overseeing commercial therapeutics operations for rare-disease research and trial readiness.