Director, Patient Advocacy and Engagement

🔥 0 minutes ago

🏄 California – Remote

🏄 California – Remote

💵 $220k - $250k / year

⏰ Full Time

🔴 Lead

👔 Director

👻 Ghost score 0%

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Encoded Therapeutics Inc.

WebsiteLinkedInAll Job Openings

51 - 200 employees

Founded 2013

🏥 Healthcare

💼 Consulting

🏭 Manufacturing

Healthcare • Consulting • Manufacturing

Encoded Therapeutics Inc. is a biotechnology company focused on developing innovative genetic medicines to address central nervous system (CNS) disorders. Their work aims to tackle the root causes of these disorders, providing potentially transformative, long-lasting therapies designed to improve patient outcomes and quality of life, particularly for conditions such as Dravet Syndrome and Angelman Syndrome. The company uses a unique targeting and regulation platform allowing for increased gene specificity and cell selectivity, overcoming challenges associated with first-generation gene therapies. Encoded Therapeutics is dedicated to translating cutting-edge science into practical, life-changing solutions for patients worldwide.

📋 Description

• Help shape and lead execution of patient advocacy strategies across the portfolio • Support advocacy engagement for emerging pipeline programs by identifying key stakeholders and establishing long-term partnerships • Build and maintain relationships with patient advocacy organizations, community leaders, clinicians, and industry partners • Plan and execute listening sessions, advisory boards, and other insight-generation activities • Translate patient insights into recommendations informing development and launch planning • Partner with Clinical Operations, Medical Affairs, Regulatory, Health Economics and Outcomes Research, Market Access, Commercial, and Corporate Communications • Develop evidence-based educational materials and programs for patients and families • Support ethical and compliant clinical trial awareness and community engagement • Connect directly with patients and families to handle inquiries while maintaining privacy and confidentiality • Manage projects, budgets, grants, sponsorships, and external vendors • Champion the patient perspective and contribute to a patient-centric culture • Maintain working knowledge of ICH, GCP, HIPAA, and Medical–Legal–Regulatory review processes

🎯 Requirements

• Bachelor’s Degree in a healthcare-related field, such as Nursing or Science, with a minimum of 12 years in patient advocacy or a closely related biopharmaceutical discipline with a bachelor’s degree, or 8 years with a master’s degree • Proven track record in rare disease clinical development and community engagement • Good judgment, professionalism, and ability to influence partners and develop consensus without direct authority • Demonstrated success executing advocacy plans and translating patient insights into practical deliverables • Strategic and critical thinking with tactical execution skills • Self-motivated, able to prioritize, take initiative, and manage a high volume of work with minimal supervision • Outstanding oral and written communication skills • Ability to translate complex scientific and clinical information into clear, empathetic language • Ability to present effectively to large audiences and small stakeholder groups • Proven track record establishing relationships across management teams and external stakeholder groups, including clinicians and researchers • Strong problem-solving abilities and attention to detail • Ability to manage multiple projects, vendors, and competing priorities concurrently • Proficiency with MS Office Suite and archiving systems • Willingness to travel domestically and internationally as needed • Master’s degree and clinical experience as a healthcare professional preferred • Direct experience with rare genetic disorders, neurology, including epilepsy or pain, and gene therapy programs preferred • Experience supporting programs from preclinical or early-stage community engagement through commercialization preferred • Experience with patient-focused drug development, patient-experience research, and patient-centered evidence preferred • Proven ability to manage external consultants, agencies, research vendors, grants, sponsorships, and project budgets preferred

🏖️ Benefits

• Comprehensive benefits package, including competitive employer premium contributions • Meaningful stock option grants • PTO, sick time and holiday pay • Generous Parental Leave program • Pre-tax medical and dependent care programs • STD, LTD, Life and AD&D • Professional development opportunities • Team-building events • Fully stocked micro - kitchen • Fitness center at South San Francisco location • Discretionary annual bonus • Discretionary stock-based long-term incentives