Patient Support Specialist

🔥 12 hours ago

🏄 California, Nevada – Remote

🏄 California – Remote 🎰 Nevada – Remote

💵 $97.1k - $122.2k / year

⏰ Full Time

🟡 Mid-level

🟠 Senior

💝 Customer Support

👻 Ghost score 0%

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PTC Therapeutics, Inc.

WebsiteLinkedInAll Job Openings

501 - 1000 employees

Founded 1998

🧬 Biotechnology

🏥 Healthcare

💊 Pharmaceuticals

Biotechnology • Healthcare • Pharmaceuticals

PTC Therapeutics, Inc. is a patient-centered biopharmaceutical company focused on discovering, developing, and commercializing medicine for children and adults living with rare and serious diseases. They are committed to extending life's moments for patients with rare diseases and their loved ones, specializing in orphan and ultra-orphan disorders, oncology, and anti-infectives.

📋 Description

• Educate patients and caregivers on disease state, medication safety, administration, and storage via phone, video, and other approved channels • Coordinate therapy initiation and ongoing patient support with Sales, Patient Engagement, and Case Manager teams • Address adherence barriers including diet fatigue, taste preferences, social pressure, school/work constraints, access challenges, and psychosocial factors • Provide proactive follow-up based on program triggers, risk, missed check-ins, or patient-reported concerns • Support transitions such as increasing adolescent independence and transition to adult care teams • Coordinate with caregivers and healthcare providers to reinforce plans and continuity of care • Escalate urgent concerns, clinical red flags, and safety issues according to program guidance and reporting procedures • Serve as the PKU resource for Patient Services staff, answer questions, support complex cases, and coach on patient communication • Contribute to PKU-specific workflows, scripts, and patient education tools • Share adherence-barrier themes and insights with leadership to improve services and patient experience • Document patient interactions accurately and promptly in approved systems • Maintain HIPAA/privacy and PTC Cares program compliance • Participate in quality improvement initiatives and adherence/outcome tracking

🎯 Requirements

• Bachelor’s Degree and 5+ years of clinical nutrition/nursing and/or patient counseling experience with demonstrated adherence/behavior change support skills • Metabolic Dietician or Pediatric Dietician and/or nursing expertise with practical, real-world application across life stages • Experience with PKU and/or inherited metabolic disorders across pediatric and adult populations • Strong competency in patient education, motivational interviewing, and coaching, including video/telephone delivery • Strong interpersonal and communication skills to interact with patients, families, and HCPs • High proficiency in handling patient logistics and tracking therapy adherence • Excellent understanding of the pharmaceutical delivery process and ability to work compliantly within the industry • Proficiency with Microsoft Office • Ability to work independently and collaboratively in a fast-paced, matrixed team environment • Experience in rare disease patient services, hub services, specialty pharmacy, or patient support programs • Familiarity with EMR/CRM documentation and metric-driven patient outreach • Travel requirements: Up to 50% • Active Dietitian/Nursing license and/or Master’s degree preferred • Special knowledge or skills and/or licenses or certificates preferred • Bilingual, as aligned with patient population needs • Preferred candidate location: U.S. West Coast (Pacific Time Zone); candidates in other locations will be considered

🏖️ Benefits

• Short- and long-term incentives • Medical plan • Dental plan • Vision plan • Retirement savings plan • Equal opportunity employment