Community Advocacy Specialist

🔥 15 hours ago

🍂 Massachusetts – Remote

🍂 Massachusetts – Remote

💵 $85k - $105k / year

⏰ Full Time

🟡 Mid-level

🟠 Senior

👫 Community Manager

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Travere Therapeutics

WebsiteLinkedInAll Job Openings

201 - 500 employees

Founded 2013

🏥 Healthcare

💼 Consulting

🧬 Biotechnology

Healthcare • Consulting • Biotechnology

Travere Therapeutics is a biopharmaceutical company committed to identifying, developing, and delivering life-changing therapies for people living with rare diseases, particularly those related to rare kidney and metabolic disorders. The company has a strong focus on advancing science in these fields, with a pipeline that includes treatments for conditions such as IgA nephropathy and focal segmental glomerulosclerosis. With the full U. S. FDA approval of its non-immunosuppressive treatment for IgA nephropathy, Travere Therapeutics continues to set new standards of care. The company collaborates with the rare kidney disease community, including patient advocacy organizations and clinical trial investigators, to bring hope to patients with these serious conditions.

📋 Description

• Cultivate and steward relationships with patient advocacy organizations, community-based organizations, patients, families, caregivers, and other community stakeholders • Serve as a day-to-day contact and follow through on agreed actions • Identify opportunities to broaden engagement with local organizations and expand reach to less-connected populations • Represent Travere at patient meetings, educational programs, conferences, and community events • Interact with healthcare professionals and community leaders to understand local needs and support approved community education and engagement activities • Prioritize routine outreach, respond to partner needs, recommend next steps, and escalate sensitive matters or issues requiring guidance • Gather insights through field interactions and approved listening activities • Document and synthesize observations into concise summaries and recommend opportunities for strategy, education, and future programs • Share insights with Community Advocacy leadership and Patient Advocacy colleagues • Maintain working knowledge of the rare kidney disease advocacy landscape and evolving patient education needs • Coordinate local and virtual programs, listening sessions, educational events, and grassroots activities from planning through follow-up • Support RKD and Me programming and patient and caregiver ambassador activities • Coordinate venues, invitations, registration, vendors, travel, accessibility, materials, and on-site needs • Gather participant feedback and assess attendance, reach, participant experience, and lessons learned • Maintain relationship records, engagement histories, commitments, project plans, budgets, expenses, and program metrics • Prepare meeting briefs, presentations, outreach communications, and program summaries • Coordinate required internal reviews and use approved materials • Collaborate with therapeutic advocacy leads, Rare Kidney Educators, Corporate Communications, Patient Marketing, Medical Affairs, and other colleagues • Operate within approved budgets, plans, and decision authority; protect patient privacy and preserve patient-organization independence

🎯 Requirements

• Bachelor’s degree in public health, communications, healthcare, nonprofit management, or a related discipline, or an equivalent combination of education and relevant experience • At least four years of experience in patient advocacy, including community engagement, patient or caregiver programs, or external stakeholder relationships • Experience cultivating relationships with patients, caregivers, advocacy organizations, or community partners • Experience independently managing assigned projects or programs • Working knowledge of the external rare kidney disease landscape, including patient organizations, community needs, and relevant scientific and treatment advancements • Experience interacting with healthcare professionals and communicating effectively with varied external audiences • Experience with public speaking, presentations, or group facilitation • Ability to communicate clearly and adapt to audience needs • Preferred: experience in rare kidney disease or another rare disease community, particularly in a pharmaceutical, biotechnology, healthcare, or nonprofit setting • Preferred: experience with ambassador programs, community education, grassroots outreach, or culturally responsive engagement • Bilingual proficiency, including Spanish, is a plus • Sound independent judgment, initiative, and accountability • Strong listening, relationship-building, written communication, and public speaking skills • Ability to translate community observations into clear insights and practical recommendations • Strong organization, project coordination, and attention to detail • Proficiency with Microsoft Office and relationship or project tracking systems • Ability to understand and accurately communicate approved disease education within role boundaries • Familiarity with privacy, compliance, and ethical principles affecting patient advocacy • Ability to travel up to approximately 50 percent domestically, including occasional evening and weekend commitments

🏖️ Benefits

• Premium health, financial, work-life and well-being offerings for eligible employees and dependents • Wellness and employee support programs • Life insurance • Disability benefits • Retirement plans with employer match • Generous paid time off • Short-term incentive compensation • Long-term incentive compensation in company stock

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