Senior Manager – Patient Advocacy, Duchenne Muscular Dystrophy

🔥 13 minutes ago

🇺🇸 United States – Remote

💵 $170k - $180k / year

⏰ Full Time

🟠 Senior

👔 Manager

👻 Ghost score 0%

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Catalyst Pharmaceuticals, Inc.

WebsiteLinkedInAll Job Openings

51 - 200 employees

Founded 2002

🏥 Healthcare

🧬 Biotechnology

💊 Pharmaceuticals

Healthcare • Biotechnology • Pharmaceuticals

Catalyst Pharmaceuticals, Inc. is a biopharmaceutical company focused on the development and commercialization of innovative therapies for people with rare and debilitating diseases such as Lambert-Eaton myasthenic syndrome (LEMS), epilepsy, and Duchenne muscular dystrophy (DMD). Catalyst is dedicated to advancing cutting-edge science and improving the lives of patients through its clinical research pipeline, approved products, and compassionate use programs. The company actively engages in environmental, social, and governance (ESG) responsibilities and strives for social responsibility in all its endeavors.

📋 Description

• Support execution of enterprise and brand-level patient advocacy strategies across a rare disease portfolio • Provide operational and project management support to the patient advocacy team • Collaborate with the Director of Patient Advocacy and cross-functional partners to implement programs, initiatives, and resources addressing patient and caregiver needs • Manage patient advocacy partnerships, including relationship development, sponsorship and grant oversight, and benefit fulfillment • Serve as point of contact for patient organizations and advocacy leaders • Collect, analyze, and report program metrics • Collaborate on development and delivery of compliant patient-facing educational materials • Identify patient advocacy events and opportunities; manage the events calendar and coordinate cross-functional attendance • Support budgets and vendor management • Develop team meeting agendas, document action items, and ensure follow-through • Manage inventory and budget of advocacy materials • Participate in external vendor and partner calls • Represent the company at patient advocacy events and meetings and create follow-up reports

🎯 Requirements

• Bachelor’s Degree • 5+ years of experience in patient advocacy, corporate affairs, or a related function and/or biotech/pharma sectors • Proven ability to build and sustain relationships with patient advocacy organizations and community stakeholders • Collaborative team member eager to work closely with colleagues • Strong commitment to advocating for patient communities • Excel in project management, prioritizing tasks, organizing, and managing multiple projects • Knowledge of requirements governing patient engagement in a regulated industry • Willingness to travel approximately 30–40%, including evenings, weekends, and multi-day trips • Ability to represent the company at key patient advocacy events

🏖️ Benefits

• Health insurance • Dental insurance • Vision insurance • Generous paid time off • Retirement savings plan with Company Match • Competitive wages